Beckwith-Wiedemann Syndrome is a very rare disorder that is present at birth. Causing an overgrowth of the tongue and body, it often requires intervention. The scariest party? It increases the risk of childhood cancer significantly. Theresa and her son, Owen, join us this week to talk all about this syndrome! Then, Dr.Aguilar, long time guest and friend of Hatching for Health, comes on to give his expert opinion. Watch this episode to learn more!
This week, I had the pleasure of sitting down with Chancee and her son, Lucas to talk about NKH, also known as nonketotic hyperglycinemia. Doctors didn’t think that Lucas was going to make it out of the NICU as an infant... but here he is, almost 3 years old. Tune in to this episode to learn more!
This week, we were honored to have Chardell Buchanan on our show. As a mother of a child with a rare condition, she knows how hard it can be to take care of yourself. That's why she dedicates her efforts as a dietician to helping parents of children with diseases, conditions, and disorders take care of themselves and live healthier lifestyles.
Imagine what it would be liked to be diagnosed with multiple conditions in your late 20’s, having to totally re-learn how to live your life. Then, imagine taking that frustration and turning it into something positive, like starting a company that celebrates people’s differences. That is exactly what this weeks guest, Kristine, had done!